Dear friends,
Our sweet Julianna went to heaven today. I am stunned and heartbroken, but also thankful. I feel like the luckiest mom in the world, for God somehow entrusted me with this glorious child, and we got almost six years together. I wanted more time, of course, and that’s where the sadness comes in. But she is free now.
I will have more to say later. For now, this is what is in my heart.
Today, I just want the world to know that there was a girl named Julianna.
She was a bright light. An old and delightful soul.
She loved love, and “everyone except for bad guys.”
She was an unabashed princess and she elevated everyone around her. We were all kings, queens, princes and princesses by association.
She urged us to play, to really focus on just playing. She encouraged us to be our most colorful and fabulous self. (One of her last words to me: “What’s that?” to my gray sweater…)
Her mind was “always going.” It took us to a beautiful world without limits.
Her words were startling. Sometimes I thought that people wouldn’t believe the conversations I recorded. How could a five year old know those things? But if you spent any time with her, you knew.
She fought hard to be here, harder than I’ve seen anyone fight, with a body that was too frail for this world. She was so brave — and I hated that she had to be so brave. This last fight was not to be won by her body. It was tired, and it needed to rest. And when it did, she was comfortable.
Today, she is free. Our sweet Julianna is finally free.
Please do not forget her. She lived, she was real, and she mattered.
I cannot believe that she’s gone. Already, I worry that some of her has faded, and I need to remember all of her. The way her warm little hands felt, the hugs she would give by asking you to drape her arm around your neck. The kisses she blew. They never ran out.
Please remember our precious girl: she was Julianna.
Julianna Yuri Snow
25 August 2010 – 14 June 2016
Feature photo and photo on right by Audrie LeGault.
Julianna Yuri 
I am so sorry, my heart goes out to you and thank you for sharing her life!
My prayers are with you.
Valerie
Valerie Machen
Mendocino Wine Co.
Compliance
707.463.5380
707.462.4081fax
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My heart and prayers go out to you and your family. I’ve been following Julianna’s story for some time now. She is free, like you say, and you will see her again!
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My heart is absolutely broken as I read this through my tears! Please know that your beautiful baby girl will NEVER be forgotten! I think of her often and will continue to do so! I’m sending all of my love and prayers! God Bless her beautiful little soul!
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I am so grateful to have “known” Julianna through the news article last year and through your updates. She was truly a light shining on earth, and I know — at least for me — her impact will always be felt — especially when my kids are being weird or snarky or just plain astonishing. She was so funny; I loved to read about her remarks and her imagination and her interactions! I’ll remember her when my son (who is the same age as Julianna) expresses things in ways only kids can! She was a gift, and though I am thankful she is free, she will be missed. Thank you, Julianna, for being here. And thank you to your family for letting us know you.
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The world won’t be as beautiful without Julianna in it. She won’t be forgotten. She survives through you… your memories and the stories you have recorded through this glorious and so very difficult journey. I am so very sorry for this momentous loss in your life. Praying your days are filled reminders of the happy times and a sense of peace that Julianna is still with you in spirit.
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Michelle, know that we grieve and rejoice with you all in the same moment. I can only imagine her smiling right now. Hold steady to Christ.
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Your precious family is in my prayers! Thank you for sharing this most sacred journey! I have been encouraged and made stronger in our Lord Jesus Christ and His plans for our life and eternity!
In Him,
Cheryl
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Oh, Michelle, I am so sorry. My heart hurts. Julianna was the bravest, funniest and most imaginative child I’ve ever known! And, I do feel like I knew her because of you and everthing you’ve shared with us. Thank you. My prayers are with you and your family.
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I am saddened to learn of her passing. I looked forward to reading her bits of wisdom, always amazed at the depth at which she contemplated life and those around her.
I, for one, will not ever forget her, as she moves on to her next big adventure on the anniversary of my beginning my current adventure.
The heavens will be a little brighter from now on.
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My heart sank just now, although i did not have the pleasure to meet the little princess, i felt that i knew her somehow. She was in my heart, how could she not be a part of everyone’s heart, such an amazingly strong little mind. I loved reading your posts about her stories and your discussions you had with her. Thank you so much for sharing all of this, she is a beautiful and an amazing little princess i will never forget Princess J. May she rest in peace and God Bless Her.
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I am so sad that your beautiful Julianna has been separated from you, but so relieved that she is in the presence of our Lord and free of all that slows her down in her eternal life as a princess. (I can imagine her delight at the sights and sounds of her heavenly home!) I wiill carry her inspiring example with me as I strive to truly live each day and will keep you three and your extended family in my prayers. May you be overwhelmed by the love the Father has for you as well his peace as you take one day at a time . May the many stories of how people have been touched by Julianna serve to comfort you and bring smiles.
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I am so sorry for your loss. And I am praying for comfort for you and your family. Thank you for sharing her with us. You have a new guardian angel now ❤
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I feel as if I know you and your family well, so I am sad and shocked too. Love you all and am praying for you. Forgive if I write another post or two. I want to celebrate Julianna Yuri.
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I had to stop what I was reading to make sure I was reading correctly. Not now….not today. I thought after I read yesterday’s post that it was another bad episode and we would continue hearing all of the stories from this beautiful child. I am so very very sorry for your loss. She is now running and playing “outside” like she dreamed of….I’m just so stunned. Thank you for sharing her story, she definately has a place in my heart and she will never be forgotten. Rest in peace dear child, finally, the pain and suffering is over.
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my prayers and thoughts are with your family. Even so I never met Julianna in person, she was brightening my days by her funny comments and her “joie de vivre”. She was a very special person with amazing parents. She is now running free with all the other little angels who left us too soon. Julianna will always have a place in my heart,
love, Dominique
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Oh my God, Michelle, I am so so sorry for your loss of this precious little princess. Yesterday’s post had me praying that she would rally and be able to overcome this latest attack on her body. She was a fighter and braver than many grown people that I know. I wish I could just wrap you all up in one big hug.
I, for one, will never forget her. Thank you for sharing Julianna with us.
She was truly a gift to all of us.
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My heart goes out to your family and everyone who had the privilege of knowing Julianna.
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Thank you Michelle for sharing her beautiful life with Me. You will be with her again. She is probably already entertaining God and making Him laugh. I hope to meet her in the promised land.
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I am so deeply sorry and so very grateful at the same time….. Thank you for sharing Julianna so freely….Her stories always brought smiles to my face….She has touched my heart in so many places…. I will never forget your beautiful little girl…..her stories,her smiles,her bravery and her struggles…..Julianna was just too special for this earth….. I am so blessed to have known an angel….My deepest and sincerest condolences…..This world was a much better place because she lived….Rest freely and easily Julianna…..Gail
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I am so terribly sorry and heartbroken. This little girl had more life and spirit than anyone. I hope she’s wearing her most beautiful dress for her tea party, where she can run around and shine on those who love her.
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My thoughts and prayers to you and your family. Julianna was a beautiful and bright child. I am so saddened by the news but know that Heaven has truly gained a beautiful Angel today! She will always be with you and your family and she has touched so many lives. I was honored to follow her journey. May God Bless you and know that your beautiful daughter is now in peace and free of any pain.
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I am so sorry. I am heartbroken, as I was expecting to receive an email where you told us about a miracle. I know things happen for a reason, and as you said, you were so lucky to had been able to be part of that precious soul life. I am sure you will see her again. There is no distance that can separate true love. For now, she will always be alive in the hearts of those who in one way or another, had the privilege to be touched by her story and life. A precious angel is in heaven, and may her heart and yours find solace and peace in this difficult time. God bless you all.
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I’m so sorry for the loss and now the absence of your precious girl. But, but, WE Believe that “to be absent from this Earth, is to be present with God”. Darling Julianna, I can only imagine the Tea Party you are having with Jesus! I will bring out my prettiest tea set and display it in a special place. And, every time I see it, I will whisper a prayer for Peace & Strength for your family. May you all feel the Peace that can only come from Him. Julianna is impossible to forget! Love from MN.
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May she rest in peace..your little princess…
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Dear Michelle,
All I can do is send my deepest sympathy and regard for you and your family. As a grandmother of a little girl who became free at nine months, nine days, I understand your sorrow and your love.
Your messages about Juliana have brightened my soul and those of so many others.
Julianna is free . . . and perhaps she runs free with Claire Elizabeth . . . who would have been 17 years old in May.
My heartfelt sympathies . . .
Monica Roland Lockport, NY >
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Sweet, sweet girl. I will never forget you. I’ve never met you but I will remember always your courage and grace that defied your age. I will remember your family who faced uncertainty and your hardship with beautiful unity and openness- blessing us all by sharing you with when they if so little time with you themselves. God bless you sweet little girl. You will continue to inspire us from above.
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I’m sorry for the typos. I tried to say “when they had so little time with you.”
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My heart aches for you. The loss of a child is the hardest thing in the world. You were lucky to have such an amazing daughter. Julianna rest in peace you are now in a good place.
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I am so sorry. I fell in love with Julianna through your emails, and she touched my heart. I will never forget her, or you. She was lucky to have had such a wonderful family and mom. Thank you for sharing her with us.
Molly
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Bless her all the moments she gave you as well as us! She is a beautiful sprit! She runs, picks all the flowers, and is having the grandest tea party now!! GOD BLESS YOR FAMILY!!! RUN FREE JULIANNA!!!!
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My very heartfelt love to you and your family on the loss of one so precious. I have followed and Saved each of the emails on Julianna’s journey. She may only been 6 but she taught each of us the meaning of enduring with a huge smike, wit and love. You were truly blessed and through your emails and pictures blessed each of us.
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Oh, I am just heartbroken for all of you. Please know that although we have never met, Julianna touched me greatly and I have thought of her (and you) often – and will continue to do so.
I am thinking of you and your family.
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I am so sorry for your deep and sorrowful loss. Your beautiful daughter was an inspiration to all that knew her. We are all blessed and strengthened from knowing her and your family. I will remember Julianna always!
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Thank you for sharing Julianna’s story. I feel like I have really gotten to know your sweet little princess and she definitely captured my heart. I am deeply sorry for your loss. May you find strength and peace. My prayers are with you and your family.
Your daughter will be remembered by everyone that was touched by her. She definitely left her imprint on this world.
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My heart is so heavy for all of you. Bless you all and most importantly Princess Julianna.
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I will never forget you Julianna Yuri Snow. Sweet little girl, you taught me so much. Although my heart is sad that you could not stay with us, I am happy to think that right now you are having the best tea party ever. To Julianna’s mama, my heart is with you. Please let us know how you are doing when you can. So many people care. Thank you for sharing your precious little girl with us.
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My heart is mourning today. This little angel inspire me and i have been following all your family for a year. I will always remember this little smiley face, her courage but most of all, her way of seing life. She was so blessed to have a family like yours. My thoughts are with you and there always will be a place in my heart for her.
God bless you all. And, she will be there to guide other people who didn’t deserver to leave this earth too soon.
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I am truly sorry. It’s hard to process and understand. You are an amazing woman and mother, and Julianna was just exceptional. May she rest in peace, and may her love follow you and your family at all times…
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Praying for you, Steve and big brother. May you feel Our Fathers loving arms. May you gain strength from everyone near and far. Praise that Julianna is with Jesus and is a free happy very special little girl. She was an angel on earth. Hugs across the miles.
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This child, your remarkable Julianna, will not be forgotten. I am so terribly sorry.
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So very sorry.
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😦
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This child is so embedded in the hearts of many, she will never be forgotten. When I feel i need a little extra push to try harder, I will think of Julianna, when I think I cannot take another step, I will think of Julianna. So many have watched with awe the fragile little girl entrusted to you and family , I firmly believe , for you to love and protect, but, even more her job was to instill in many , what it takes to get through a day , a night, and do it with grace. God Bless Julianna, her family and friends and all those that followed and prayed . We have have been blessed, recognize that and pay it forward.
On Tue, Jun 14, 2016 at 10:42 AM, Julianna Yuri wrote:
> Michelle Moon posted: “Dear friends, Our sweet Julianna went to heaven > today. I am stunned and heartbroken, but also thankful. I feel like the > luckiest mom in the world, for God somehow entrusted me with this glorious > child, and we got almost six years together. I wanted more ” >
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I imagine your sadness is a million times what I am feeling — my heart breaks for you guys! I have no therapeutic words for parents who’ve lost a child — I imagine the loss as a paralyzing nightmare come true. I will say this about Julianna, though — she lived more in her almost six years than most grown-ups live in their whole life. She was an angel on Earth. She never complained and she saw the good in everything. She was smart as a whip and absolutely hilarious. I will miss her terribly!!! 😥 But thanks to God for taking her into His loving arms and relieving her of pain!
Please accept my deepest condolences, and forgive me for not having better words. I will be thinking of you guys a lot and praying for peace in your dear hearts.
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I’m so sorry to hear Julianna passed away. Sending prayers and thoughts to you all.
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Dear Michelle,
It was really heartbreaking to read the news.
I have been following Julianna’s brave fight and somehow all other problems seemed so trivial.
She was truly a wonderful and brave soul.
Thank you for keeping us updated regularly despite going through so much yourself.
My prayers are with your family.
At such times no words can be of comfort.
Stay blessed.
Sent from my iPhone
>
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Michelle, I am speechless and heartbroken. My girls, Mikayla and Kaia wanted me to tell you that she is up above, watching us all and is probably dancing and twirling around! 🙂 We will never forget her or your family. Please let us know, when you are ready, on how your whole family is doing.
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Rest in peace Princess J. There are many great things left for you to do in heaven.
You will never ever be forgotten and will
be remembered and loved for ever!
Valentino
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O Michelle are beautiful Princess I can’t believe what I just read. My heart breaks for you and your family.
She was so amazing I’m going to really miss all her little stories. God bless you and your family. She touched son many people including me. I will never forget her. Please will you stay in touch. love to all of you!
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I didn’t have the pleasure of meeting Julianna in real life, but reading your blog let so many people like me the privilege of getting to know her. Her will to fight CMT was tremendous and her personality, spunk and understanding of what she was going through was beyond her years.
I am praying for peace, comfort and strength for your whole family, Julianna’s nurses and for Julianna. Julianna will not be forgotten. Her light and zest for life will continue on.
Julianna, I know that you are no longer tired and are able to enjoy all if the yummy foods that you have wanted to eat.
Love and prayers being sent your way.
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Oh Michelle…my heart is breaking for you and your family….
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As a mother of a special needs child my heart goes out to you. I am truly sorry for your lose but she is in a good place. I’m glad you shared her with the world especially me. I laughed aND out laugh sometimes after reading your blog. She was truly special and I am praying for you and your family.
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